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Nigeria has highest rate of Sickle Cell Disorders worldwide

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By Ifeoma Ikem

 

The Chairman Sickle Cell Foundation of Nigeria, Prof Olu Akinyanju says Nigeria has the highest incidence of Sickle Cell Disorders (SCD) world wide.

Akinyanju who said this while marking this year’s World Sickle Cell day, said it is a day set aside to raise awareness about all aspects of Sickle Cell Disorder (SCD).

He noted that SCD is the world’s most common Genetic Disorder and called on government at all levels, private sector, international organization,individuals including persons with SCD, their families and friends and orders to be aware and act as best as possible.

“Over 150,000 babies are born every year in Nigeria,while about 40 million Nigerians are healthy carriers of the sickle cell gene.

“Many of them, especially from poorly informed families, do not live beyond childhood”.

He added that recently the foundation held some events like Webinar, Sickle Cell Champions Club,Virtual Panel Discussion and Global Virtual Dance/Dance Competition to create awareness about the disorder.

“Through Webinar, the foundation partnered with the US-based NGO on rare diseases-PRDPF which was hosted globally on the theme” Sickle Cell Disorder the New Frontier.

“The experts assured participants that with the on going clinical trials, the future is bright for persons with sickle cell disorder.

The Don added that while celebrating 2021 Sickle Cell world day, the Sickle Cell Foundation of Nigeria has established a bone Marrow Transplant (BMT) Centre in partnership with Lagos Teaching Hospital (LUTH) for the treatment of Sickle Cell Disorder .

“The comprehensive state of the art BMT centre will ensure that the life changing cure is available and accessible in Nigeria “and attract patients from other parts of the world, a reverse medical tourism shift.

“Also, free drugs and foodstuff were distributed as palliative to persons with sickle cell and their families.

The National Director and Chief Executive Officer of the Foundation, Dr Annette Akinsete said they are happy to announce to persons with sickle cell disorder that it has cure as the foundation has established the bone marrow centre in Nigeria.

“I am glad we raised the awareness, though we did not do much last year in reaching out to the communities within the state due to Covid-19 pandemic but more people are knowing about the foundation through the awareness and other programmes from the centre that reached people in the rural areas.

” This year is the 13th edition, gladly not just sickle cell foundation but other coalition NGOs decide to come together with the theme “Knowledge is power” to mark this year world sickle cell day.

“Globally, there are important days being celebrated annually which come with kits, it may be on education, medical talkshow but it sensitizes and engages the stakeholder.

Pastor (Mrs) Atinuke Adeleye, Founder of the Sickle Cell Champion’s Club, said the club is to encourage persons with sickle cell disorder to live a normal life like other people.

According to her, the club is where persons with sickle cell disorder come together to share views or ideas about the control of Sickle Cell Disorder in Nigeria.

“This helps for effective solution to the problems associated with the sickle cell and related Disorder in Nigeria.

“Pain is pain, everybody, everyone feels pain, we the sickle cell disorder have hope we will live she added..

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Goodwill Message from Otunba Fola Ogunmefun, National Head of NBM of Africa Worldwide, on the Occasion of June 12 Democracy Day Celebrations

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Goodwill Message from Otunba Fola Ogunmefun, National Head of NBM of Africa Worldwide, on the Occasion of June 12 Democracy Day Celebrations

Goodwill Message from Otunba Fola Ogunmefun, National Head of NBM of Africa Worldwide, on the Occasion of June 12 Democracy Day Celebrations

 

 

 

 

 

 

Fellow Nigerians,

 

 

 

 

Sahara Weekly Reports That On behalf of the Neo Black Movement (NBM) of Africa Worldwide, I extend warm greetings to all Nigerians as we commemorate Democracy Day on this significant June 12. This day serves as a powerful reminder of our collective struggle for democracy and the relentless pursuit of justice and equity for all citizens.

 

 

 

 

 

Goodwill Message from Otunba Fola Ogunmefun, National Head of NBM of Africa Worldwide, on the Occasion of June 12 Democracy Day Celebrations

 

 

 

 

 

As we celebrate this historic day, we must acknowledge the immense challenges our nation continues to face. The socio-economic hardships, pervasive insecurity, and rising unemployment have left many Nigerians struggling to make ends meet. These challenges have tested our resilience and resolve as a people.

 

 

 

 

 

 

 

 

 

 

 

We call on the government to prioritize the alleviation of these sufferings. It is imperative that our leaders take decisive and impactful actions to address these issues. Enhanced security measures, economic reforms, and policies that create job opportunities are essential steps toward a more prosperous and secure Nigeria. The well-being of the masses should always be at the forefront of governance.

 

 

 

 

 

 

 

 

 

 

 

Despite these challenges, we encourage all Nigerians to remain steadfast and hopeful. Our strength lies in our unity and our unwavering belief in the promise of our nation. Let us continue to support one another and work together towards a brighter future.

 

 

 

 

 

 

 

 

 

 

To our esteemed members of NBM of Africa, I urge you to remain law-abiding and uphold the values that our movement stands for. Our commitment to justice, equity, and the betterment of society must guide our actions. Let us lead by example and contribute positively to the communities in which we live.

 

 

 

 

 

 

 

 

 

 

 

As we celebrate Democracy Day, let us remember that the journey to a fully realized democratic nation is ongoing. Our collective efforts, resilience, and determination will pave the way for a Nigeria where every citizen can thrive in peace and prosperity.

 

 

 

 

 

 

Happy Democracy Day, Nigeria!

 

With solidarity and hope,

 

Otunba Fola Ogunmefun

National Head, NBM of Africa Worldwide

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BREAKING! Popular Nollywood Actor, Sule Suebebe Is Dead

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BREAKING! Popular Nollywood Actor, Sule Suebebe Is Dead

BREAKING! Popular Nollywood Actor, Sule Suebebe Is Dead

 

 

 

 

 

 

 

 

Sahara Weekly Reports That Veteran Nollywood actor, Dayo Adewunmi, popularly known as Sule Suebebe, is dead.

 

 

 

 

 

BREAKING! Popular Nollywood Actor, Sule Suebebe Is Dead

 

 

 

 

The Yoruba top actor died in the early hours of Wednesday at an undisclosed hospital in Ibadan, the Oyo State capital.

 

 

 

 

 

 

 

 

 

 

The news of his demise was broken on Wednesday by a popular Ibadan-based cleric, Pastor Ademola Amusan, a.k.a. Agbala Gabriel, in whose care the late thespian had been for some months.

 

 

 

 

 

 

 

 

 

 

Announcing Suebebe’s death, Agbala Gabriel wrote on his Facebook page, “It’s a pity, Baba Suebebe died at hospital this morning. May his gentle soul rest in perfect peace.

 

 

 

 

 

 

 

 

 

 

 

 

An undisclosed ailment brought the late actor in touch with Pastor Amusan who through his humanitarian outreach programme on Facebook page raised financial support for the deceased.

 

 

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Akubo Victoria Leads Kogi East Women In Solidarity Walk For Governor Usman Ododo

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The Senior Special Adviser to Kogi Governor on Youth and Women Mobilization, Akubo Victoria has led several women from Kogi East under the aegis of ‘Kogi East United Women’ in a solidarity walk for Governor Usman Ododo.

Akubo Victoria, who is the convener of the initiative, made it known that the walk is to declare support for the good works of the governor and appreciate him for the appointments he has given women in Kogi East.

She stated that for the first time, Kogi East were given two commissioners and that despite the fact that Governor Ododo is an Ebira man, he is regarded as their family because he has performed well since he became governor.

‘’I would give Ododo 100%, he has spent few months in office and for the first time, we have two commissioners from Kogi East that are women. We are not known for tribalism in Kogi East and despite the fact that our governor is in Ebira man, we see him as our family. We are here to tell our people that we love them and we are ready to work with them.’’

One of the members of Kogi East United Women, Comfort Onoja asserted that the time of election has elapsed and that there is need for everyone to deliberate on how to move forward. She called on all aggrieved parties to support the government of Usman Ododo.

‘’It is time for us to sit down and deliberate about what will come for us. We need development and of course there are aggrieved people but we want them to let it go, power belongs to God. It is time to come together because there is no time, we are not going to live in this world forever. Let us come together for the success of this present government.’’

The group were joyfully received by the Secretary to the state government.

 

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